Dealing With Chronic Illness as a Hermit

Because a couple of people have already asked about this because of my last post, I am reprising it now. 

[[Dear Sister, you have written you have chronic illness with chronic pain. I was wondering if that gets in the way of living of living eremitical life. For example, if you have a bad spell or relapse or something what happens to your Rule? Have you ever had to deal with long-term hospitalization or surgical rehabilitation? Did that change the way you prayed?. . . Do you ever feel like a failure as a hermit or contemplative?. . . Do you ever worry that God will not be able to put up with your weaknesses or failures (or falling short)? . . . I wonder if you would ever consider seeking dispensation of your vows for any of these reasons.]]

Interesting questions. I think I have answered something like this before but I looked for it and couldn't find it. You might want to check through the list of posts (under months and years) or the labels to the right and see if you can do better. Still, let me answer this briefly. Neither illness nor the chronic pain get in the way of my eremitical life per se. Both have led me over time to consider chronic illness as a potential vocation with eremitical life as a specific instance of this. (Remember that eremitical life is a desert life with a desert spirituality and chronic illness is, by definition, a desert experience.) However, there are certainly times when there are flares of illness and when pain is more difficult to control than other times. When this is the case my horarium changes, I spend more time in bed, I am unable to do some of the limited ministry I usually undertake, I tend not to study or sing as much, and my reading choices change. What does not change is my approach to the day as one sanctified by God through prayer at intervals throughout the day, some lectio divina, and some inner work via journaling or other writing.

While morally and canonically binding, my Rule is written more in terms of gospel and less in those of law. What I mean by this is that it lays out the ways I live the Gospel of Jesus Christ as the source and ground of life, love, and meaning for me, and it does this less than it spells out things I must or must not do. It defines what makes my life healthy and whole as a contemplative and eremitical life. But in times where I am not well or where chronic illness flares up especially, I will not be able to live this without modifications. Yes, at these times the ways in which I pray will likely differ in one way and another. For instance, rather than praying the whole of any hour of the Office I am more apt to pray a single psalm with antiphons, the Lord's Prayer and a canticle, but slowly while letting myself rest in God's hands. If I miss an hour I miss an hour. When I am awake or up again I pick up what seems most important to me --- the part that draws me most, for instance or the piece missed where I am most truly at home. Sometimes I will substitute a hymn on CD or a Taize chant for structured prayer/Office and just give myself over to the music. If I miss lots of prayer periods (and unfortunately this is sometimes unavoidable), I trust that "God gives to his beloved in sleep" (Psalm 127:2) and pick up wherever I can with whatever I most need once I am awake (whether prayer, food, water, shower, sunshine, contact with my director, etc). I think during times of flareups or extra difficulties it is critically important to keep in mind the difference between "praying all the prayers" and "praying always."

My Rule is helpful in letting me move back into various rhythms of the day as I can, but even more it is helpful in reminding me of the vision I seek to live whether well or ill, namely, "My grace is sufficient for you, my power is made perfect in weakness." I know that God is with me in every circumstance including sin and death! God accompanies me whether I am conscious of that or  capable of cooperating with him or not. So long as that is the case every moment of my life, from chronic pain, to intractable seizures and post ictal sleep, to the emotional pain and joy of inner work, to the favorite or latest Chaim Potok or Anne Perry book, can become a prayer and a source of growth in holiness. Again, prayer is the work of God within us. As for God giving up on me or some other absurd notion that somehow or other I could exhaust his patience, love, mercy, or will to accompany me well, that's the same as suggesting that my weakness might be too much for God to be the God Christ revealed! Whenever I am even tempted to give up on God in this way (not something that has happened often!), I remind myself of the following from Paul, [[ But God demonstrates his own love for us in this, that while we were yet sinners, Christ died for us.]] (Rom 5:8) In other words, when we are at our worst God loves us and gives his very life for us.

I don't feel (and have never felt) like a failure as a hermit or contemplative but I (like anyone else I imagine) always fall short in the sense that I can always grow in my vocation/authentic humanity and prayer. Again, my Rule (and the God and Gospel that inspires it) envisions and helps empower my growth in this vocation and in communion with God and love of myself and others. Sometimes I will fail at a given task (for instance, a reflection I am supposed to give, inability to meet with a client and need to postpone sessions, etc), and sometimes I will resist what is happening in prayer or the personal formation work I am doing, but while I find these failures frustrating, this is not the same as failing as either a contemplative or a hermit. When physical pain is a problem I treat it in the ways I can (medicine, TENS, exercise, meditation) and I do what I need to do while meds are kicking in (online scrabble, coloring or painting, walking around, . . ., reading an engrossing novel, etc***) --- things which are engrossing and distract from the pain while ensuring I give the meds a complete chance to work as they usually do. I ordinarily cannot sit in quiet prayer at these times because I really cannot be physically still in the way that requires. Even so, whatever I do to get through these periods, I pray and entrust myself to God's care as I wait. 

There are periods when illness dominates (and yes, I have had periods of hospitalization that extended for weeks or even several months at a time including a period of (7) experimental neurosurgical interventions --- this latter [took place] about 8 years before I became a hermit). On the whole, the essential elements of my Rule remain in some form or configuration. Were I to be unable to live major dimensions of my Rule for a significant period I would need to redact these to account for necessary changes while ensuring it remains an eremitical Rule with the same vision of such a life. (Since my Rule is drawn from my own experience it could change on the basis of my own experience --- though my vision of the nature and importance of eremitical life according to canon 603 is very unlikely to change radically; I just can't see that happening, especially because of illness/pain.)

Dispensation of vows would be unlikely to come up as an issue or option, and certainly is not something I can see myself requesting! (More likely the question of a change of vocation would come up at the beginning of a hermit's professed life, especially if there is a radical change in circumstances occurring before they have developed the heart and prayer life of a hermit.) Once these are formed, however, and the hermit has been admitted to perpetual profession and consecration, dispensation is much less likely to be something that will be considered because of illness. It is possible, however, that significant illness can reveal an eremitical life that is inadequately formed and rooted in the first place. Suffering is a wonderful test of the foundation of our lives and spirituality! At this point in my life, however, I am a hermit; it is a matter of my deepest inner truth as well as outer expression and even canonical standing; this means that I have and will always live illness and pain as challenging but integral parts of eremitical life. I think all the hermits I know, but especially those with chronic illnesses, feel essentially the same way about this.

*** (Note: this past year (2023-24 I have been experimenting with a Kailo (TM) patch a parishioner gave me. It has been very effective for some neuropathic pain and I have been able to reduce some meds by at least 50%! This means I can do quiet prayer more easily while up from pain.)